Social Wire
Tweeted
Oct 29, 2026
Hope for HIE ☀️
@HopeforHIE 1,200+ and counting! 📈 Every educational resource is meant to help parents and caregivers walk into appointments with confidence, ask the questions that matter, and advocate for their children. Knowledge is power and our families deserve to feel empowered.gBFVqh
Hope for HIE ☀️
@HopeforHIE 1,200+ and counting! 📈 Every educational resource is meant to help parents and caregivers walk into appointments with confidence, ask the questions that matter, and advocate for their children. Knowledge is power and our families deserve to feel empowered.gBFVqh
Tweeted
Oct 29, 2026
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Thursday at 8:00 PM ET for a virtual support group for parents and legal guardians new to HIE (within one year of diagnosis). 🔗 Register: https://t.co/eBi967uQhR #HIESuppTinyurl.com/NewtoHIE2026QhR #HIESuppovg5
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Thursday at 8:00 PM ET for a virtual support group for parents and legal guardians new to HIE (within one year of diagnosis). 🔗 Register: https://t.co/eBi967uQhR #HIESuppTinyurl.com/NewtoHIE2026QhR #HIESuppovg5
Tweeted
Oct 28, 2026
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Wednesday at 12:00 PM ET for a virtual support group for HIE birthing parents navigating a pregnancy after an HIE diagnosis. 🔗 Register: https://t.co/S9qXqhFnSd #HIESuppTinyurl.com/PregnancyAfter…nSd #HIESuppoOKx
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Wednesday at 12:00 PM ET for a virtual support group for HIE birthing parents navigating a pregnancy after an HIE diagnosis. 🔗 Register: https://t.co/S9qXqhFnSd #HIESuppTinyurl.com/PregnancyAfter…nSd #HIESuppoOKx
Tweeted
Oct 26, 2026
Hope for HIE ☀️
@HopeforHIE Hope for HIE is proud to have Annie Gunning, CCLS, our Certified Child Life Specialist and Grief Counselor, as part of our team. ➡️ Reach Annie at annieg@hopeforhie.org or visit https://t.co/aGULkW4xmO to learn more. #HopeforHIE #HIEawareness #ChildLife #GriefSupHIE.Support4xmO to learn more. #HopeforHIE #HIEawareness #ChildLife #GriefSuppOMmk
Hope for HIE ☀️
@HopeforHIE Hope for HIE is proud to have Annie Gunning, CCLS, our Certified Child Life Specialist and Grief Counselor, as part of our team. ➡️ Reach Annie at annieg@hopeforhie.org or visit https://t.co/aGULkW4xmO to learn more. #HopeforHIE #HIEawareness #ChildLife #GriefSupHIE.Support4xmO to learn more. #HopeforHIE #HIEawareness #ChildLife #GriefSuppOMmk
Tweeted
Oct 26, 2026
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Monday at 8:00 PM ET for a virtual support group for parents and legal guardians navigating the holiday season while raising a child with HIE. 🔗 Register: https://t.co/rBURQIRAD3 #HIESuppTinyurl.com/HolidaySeasonN…AD3 #HIESuppoNar
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Monday at 8:00 PM ET for a virtual support group for parents and legal guardians navigating the holiday season while raising a child with HIE. 🔗 Register: https://t.co/rBURQIRAD3 #HIESuppTinyurl.com/HolidaySeasonN…AD3 #HIESuppoNar
Tweeted
Oct 22, 2026
Hope for HIE ☀️
@HopeforHIE Save the date for Hope for HIE’s November virtual support group sessions! 🔗 Register: https://t.co/B6Tev80L3R #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #PICUsupport #ConnectedbyHope #HIEawarhopeforhie.org/events80L3R #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #PICUsupport #ConnectedbyHope #HIEawareuovDu
Hope for HIE ☀️
@HopeforHIE Save the date for Hope for HIE’s November virtual support group sessions! 🔗 Register: https://t.co/B6Tev80L3R #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #PICUsupport #ConnectedbyHope #HIEawarhopeforhie.org/events80L3R #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #PICUsupport #ConnectedbyHope #HIEawareuovDu
Tweeted
Oct 21, 2026
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on October 28 at 12:00 PM ET for a video support group for families who have lost a child to #HIE within the past year. 🔗 Register: https://t.co/FTismTrG8e #HIESupport #HIELossSuppTinyurl.com/LossWithinLast…G8e #HIESupport #HIELossSuppo0A7
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on October 28 at 12:00 PM ET for a video support group for families who have lost a child to #HIE within the past year. 🔗 Register: https://t.co/FTismTrG8e #HIESupport #HIELossSuppTinyurl.com/LossWithinLast…G8e #HIESupport #HIELossSuppo0A7
Tweeted
Oct 20, 2026
Hope for HIE ☀️
@HopeforHIE Sometimes the hardest part is knowing where to start. Our social worker, Jen Schaefer, helps HIE families navigate everything from finding services or connecting with other families to managing the emotional weight of the journey. Connect at HIE.Support.
Hope for HIE ☀️
@HopeforHIE Sometimes the hardest part is knowing where to start. Our social worker, Jen Schaefer, helps HIE families navigate everything from finding services or connecting with other families to managing the emotional weight of the journey. Connect at HIE.Support.
Shared
Mar 14, 2022
It's #patientsafetyawarenessweek & we'd like to address the #elephantintheroom w/ HIE.
Can some causes of HIE be preven ...
Shared
Mar 14, 2022
MARCH IS CEREBRAL PALSY AWARENESS MONTH
Cerebral Palsy functional levels are based on the Gross Motor Function Classific ...
Shared
Mar 10, 2022
Join us for our weekly Q&A events in #HIEawarenessmonth to talk about NAVIGATING THE THERAPY MAZE.
Dr. Danielle Barber ...
Shared
Mar 9, 2022
We love these #HIEawarenessmonth coloring pages created by HIE mom, Zoe, in Scotland! You can find printable versions on ...
Shared
Mar 8, 2022
10 years ago, I started hearing my boss make the statement several times as I was in my last trimester of my first pregna ...
Shared
Mar 8, 2022
For #InternationalWomensDay, tag in the women in your life who motivate, inspire and lift you up!
#HopeforHIE #HIE #HIEs ...
Shared
Mar 7, 2022
MARCH IS CEREBRAL PALSY AWARENESS MONTH
There are different types of Cerebral Palsy and different impacts and severities. ...
Shared
Mar 6, 2022
While we wish we could connect more in person, our next Zoom-based Loss Support Group, led by Hope for HIE's social worke ...
Shared
Mar 5, 2022
MARCH IS CEREBRAL PALSY AWARENESS MONTH.
Cerebral Palsy has many causes. They can be:
☀️ Structural
☀️ Genetic
☀️ Metab ...
Shared
Mar 3, 2022
We're Hiring! Hope for HIE is in a significant growth curve and we're looking to add to the team. Come grow with us!
PAR ...
Shared
Mar 3, 2022
Thank you to one of our HIE parents for connecting us to a donation from Dropbox for an in-kind nonprofits account!
Ever ...
Shared
Mar 3, 2022
We are gearing up for #HIEawarenessmonth, and looking for some volunteers to help us translate our basic awareness facts ...
Shared
Mar 3, 2022
NEW TO HIE families... our next support group led by our social worker is at 8 pm EST. We hope to see you!
Registration ...
Shared
Mar 3, 2022
Let's talk ORTHOTICS for #cerebralpalsy.
Orthotics can be a helpful support to stretch and give optimal positioning and ...
Shared
Mar 1, 2022
Posted @withregram • @lindzgarrett We are so excited to share that we are partnering with No Such Thing Co (@nosuchthing. ...
Shared
Mar 1, 2022
MARCH IS CEREBRAL PALSY AWARENESS MONTH
Here are some things to know about HIE and Cerebral Palsy:
HIE is NOT the same ...
Shared
Feb 28, 2022
It's #RareDiseaseDay! Depending on who you ask, HIE is sometimes considered rare, and sometimes not.
What is widely agr ...
Shared
Feb 27, 2022
Seems like an appropriate day to share this SAVE THE DATE and registration info!
Today is @live.laugh.love.learn.lino ' ...
Shared
Feb 25, 2022
We are SO excited to launch the 2022 HIE Awareness Month toolkit, swag shop, calendar of events, and more!
You may have ...
Shared
Feb 19, 2022
Some fun things are heading into some mailboxes around the world from our Care Committee!
☀☀☀☀☀
#hopeforhie #HIElove #co ...
Shared
Feb 17, 2022
New takeaways from the #NeonatalSeizureRegistry for best practices in communication for clinicians with families.
Hope f ...
Shared
Feb 16, 2022
FEBRUARY NEWSLETTER IS OUT!
Link in bio or URL below!
https://conta.cc/3oU4H0u
#hopeforhie #news #neuronews #neonews #n ...
Shared
Feb 15, 2022
It's time to HUSTLE FOR HOPE! Our third annual Run, Walk, Roll 5K registration is now open!
GRAB YOUR CREW AND GET HUSTL ...
Shared
Feb 14, 2022
We hope you feel SO MUCH LOVE today, but we know that life is not all hearts and rainbows.
If you're struggling, know th ...
Shared
Feb 14, 2022
TAG IN THOSE YOU LOVE IN THE #HIE COMMUNITY!
Spread the love everyone!
#HopeforHIE #HIElove #ValentinesDay #hypoxicische ...