Latest News Feed
Tweeted
Aug 13, 2026
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Thursday, August 20, at 8:00 PM ET for a virtual support group session focused on HIE & Back-to-School Readiness — open to all parents and legal guardians preparing for the school year with children who have HIE. 🔗 RegisTinyurl.com/BackToSchoolAu…njItSa
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Thursday, August 20, at 8:00 PM ET for a virtual support group session focused on HIE & Back-to-School Readiness — open to all parents and legal guardians preparing for the school year with children who have HIE. 🔗 RegisTinyurl.com/BackToSchoolAu…njItSa
Tweeted
Aug 11, 2026
Hope for HIE ☀️
@HopeforHIE facebook.com/hopeforhieB7Ryoutube.com/hopeforhie105Tbve
Hope for HIE ☀️
@HopeforHIE facebook.com/hopeforhieB7Ryoutube.com/hopeforhie105Tbve
Tweeted
Aug 11, 2026
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Tuesday, August 18, at 12:00 PM ET for a virtual support group focused on Parenting Beyond the First Year: Managing HIE Through Age 9 — for parents and legal guardians whose child is affected by HIE ages 1-9. 🔗 RegisTinyurl.com/AfterFirstYear…TDD3g8
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Tuesday, August 18, at 12:00 PM ET for a virtual support group focused on Parenting Beyond the First Year: Managing HIE Through Age 9 — for parents and legal guardians whose child is affected by HIE ages 1-9. 🔗 RegisTinyurl.com/AfterFirstYear…TDD3g8
Tweeted
Aug 6, 2026
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Thursday, August 13, at 8:00 PM ET for our video support group session designated for parents and legal guardians who have lost their children due to HIE are invited to participate in this support group. 🔗 RegisteTinyurl.com/HIELossSupport…XKoz
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Thursday, August 13, at 8:00 PM ET for our video support group session designated for parents and legal guardians who have lost their children due to HIE are invited to participate in this support group. 🔗 RegisteTinyurl.com/HIELossSupport…XKoz
Tweeted
Aug 4, 2026
Hope for HIE ☀️
@HopeforHIE It's #WorldBreastfeedingWeek and we're partnering with @gfcni_newborngfcni.org/WBW20262bGE
Hope for HIE ☀️
@HopeforHIE It's #WorldBreastfeedingWeek and we're partnering with @gfcni_newborngfcni.org/WBW20262bGE
Tweeted
Aug 1, 2026
Hope for HIE ☀️
@HopeforHIE Washington State families — meet up for an Ice Cream Social at The Scoop on Main! 🍦 🗓️ Saturday, August 8th 🕚 1:00PM PT 📍 The Scoop on Main, 880 Main Street, Buckley, WA 9832TinyURL.com/SeattleAugust2…pps://t.co/ySmOIuKdz8
Hope for HIE ☀️
@HopeforHIE Washington State families — meet up for an Ice Cream Social at The Scoop on Main! 🍦 🗓️ Saturday, August 8th 🕚 1:00PM PT 📍 The Scoop on Main, 880 Main Street, Buckley, WA 9832TinyURL.com/SeattleAugust2…pps://t.co/ySmOIuKdz8
Tweeted
Jul 30, 2026
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Thursday, August 6, at 8:00 PM ET for a virtual support group focused on Pregnancy After HIE Loss — open to birthing parents who have experienced the loss of a child affected by HIE and are seeking connection. 🔗 RegisTinyurl.com/PregnancyAfter…IUG4L0
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Thursday, August 6, at 8:00 PM ET for a virtual support group focused on Pregnancy After HIE Loss — open to birthing parents who have experienced the loss of a child affected by HIE and are seeking connection. 🔗 RegisTinyurl.com/PregnancyAfter…IUG4L0
Tweeted
Jul 30, 2026
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Thursday, August 6, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). 🔗 Register: https://t.co/dNQGNmBvpc #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NTinyurl.com/NewtoHIE2026vpc #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NIvZy
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Thursday, August 6, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). 🔗 Register: https://t.co/dNQGNmBvpc #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NTinyurl.com/NewtoHIE2026vpc #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NIvZy
Tweeted
Jul 29, 2026
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Wednesday, August 5, at 8:00 PM ET for our video support session designated for HIE birthing parents navigating a pregnancy after an HIE diagnosis. 🔗 Register: https://t.co/NSPLCZLMh8 #HopeforHIE #HypoxicIschemicEncephalopathy #Tinyurl.com/PregnancyAfter…Mh8 #HopeforHIE #HypoxicIschemicEncephalopathy #H5rB
Hope for HIE ☀️
@HopeforHIE Join Hope for HIE on Wednesday, August 5, at 8:00 PM ET for our video support session designated for HIE birthing parents navigating a pregnancy after an HIE diagnosis. 🔗 Register: https://t.co/NSPLCZLMh8 #HopeforHIE #HypoxicIschemicEncephalopathy #Tinyurl.com/PregnancyAfter…Mh8 #HopeforHIE #HypoxicIschemicEncephalopathy #H5rB
Neonatal and Pediatric-Acquired Hypoxic Ischemic Encephalopathy, a type of brain injury and condition, impacts 2-3 per 1,000 live births in the United States.
Shared
Mar 14, 2022
It's #patientsafetyawarenessweek & we'd like to address the #elephantintheroom w/ HIE.
Can some causes of HIE be preven ...
Shared
Mar 14, 2022
MARCH IS CEREBRAL PALSY AWARENESS MONTH
Cerebral Palsy functional levels are based on the Gross Motor Function Classific ...
Shared
Mar 10, 2022
Join us for our weekly Q&A events in #HIEawarenessmonth to talk about NAVIGATING THE THERAPY MAZE.
Dr. Danielle Barber ...
Shared
Mar 9, 2022
We love these #HIEawarenessmonth coloring pages created by HIE mom, Zoe, in Scotland! You can find printable versions on ...
Shared
Mar 8, 2022
10 years ago, I started hearing my boss make the statement several times as I was in my last trimester of my first pregna ...
Shared
Mar 8, 2022
For #InternationalWomensDay, tag in the women in your life who motivate, inspire and lift you up!
#HopeforHIE #HIE #HIEs ...
Shared
Mar 7, 2022
MARCH IS CEREBRAL PALSY AWARENESS MONTH
There are different types of Cerebral Palsy and different impacts and severities. ...
Shared
Mar 6, 2022
While we wish we could connect more in person, our next Zoom-based Loss Support Group, led by Hope for HIE's social worke ...
Shared
Mar 5, 2022
MARCH IS CEREBRAL PALSY AWARENESS MONTH.
Cerebral Palsy has many causes. They can be:
☀️ Structural
☀️ Genetic
☀️ Metab ...
Shared
Mar 3, 2022
We're Hiring! Hope for HIE is in a significant growth curve and we're looking to add to the team. Come grow with us!
PAR ...
Shared
Mar 3, 2022
Thank you to one of our HIE parents for connecting us to a donation from Dropbox for an in-kind nonprofits account!
Ever ...
Shared
Mar 3, 2022
We are gearing up for #HIEawarenessmonth, and looking for some volunteers to help us translate our basic awareness facts ...
Shared
Mar 3, 2022
NEW TO HIE families... our next support group led by our social worker is at 8 pm EST. We hope to see you!
Registration ...
Shared
Mar 3, 2022
Let's talk ORTHOTICS for #cerebralpalsy.
Orthotics can be a helpful support to stretch and give optimal positioning and ...
Shared
Mar 1, 2022
Posted @withregram • @lindzgarrett We are so excited to share that we are partnering with No Such Thing Co (@nosuchthing. ...
Shared
Mar 1, 2022
MARCH IS CEREBRAL PALSY AWARENESS MONTH
Here are some things to know about HIE and Cerebral Palsy:
HIE is NOT the same ...
Shared
Feb 28, 2022
It's #RareDiseaseDay! Depending on who you ask, HIE is sometimes considered rare, and sometimes not.
What is widely agr ...
Shared
Feb 27, 2022
Seems like an appropriate day to share this SAVE THE DATE and registration info!
Today is @live.laugh.love.learn.lino ' ...
Shared
Feb 25, 2022
We are SO excited to launch the 2022 HIE Awareness Month toolkit, swag shop, calendar of events, and more!
You may have ...
Shared
Feb 19, 2022
Some fun things are heading into some mailboxes around the world from our Care Committee!
☀☀☀☀☀
#hopeforhie #HIElove #co ...
Shared
Feb 17, 2022
New takeaways from the #NeonatalSeizureRegistry for best practices in communication for clinicians with families.
Hope f ...
Shared
Feb 16, 2022
FEBRUARY NEWSLETTER IS OUT!
Link in bio or URL below!
https://conta.cc/3oU4H0u
#hopeforhie #news #neuronews #neonews #n ...
Shared
Feb 15, 2022
It's time to HUSTLE FOR HOPE! Our third annual Run, Walk, Roll 5K registration is now open!
GRAB YOUR CREW AND GET HUSTL ...
Shared
Feb 14, 2022
We hope you feel SO MUCH LOVE today, but we know that life is not all hearts and rainbows.
If you're struggling, know th ...
Shared
Feb 14, 2022
TAG IN THOSE YOU LOVE IN THE #HIE COMMUNITY!
Spread the love everyone!
#HopeforHIE #HIElove #ValentinesDay #hypoxicische ...
Hypoxic Ischemic Encephalopathy (HIE) is a devastating brain injury that happens in 2-3 per 1,000 births, and more in childhood. Each April, Hope for HIE, a worldwide network of over 3,700 families, raises awareness for this condition by promoting awareness, education, and support. A comprehensive toolkit is available from HopeforHIE.org/HIEawarenessmonth.